Newly diagnosed

I have a baby diagnosed with CF

Dealing with the news that your baby has cystic fibrosis can be difficult. But it’s important to know that your journey with CF is not one that you have to travel alone.

Your child’s CF hospital clinic team will provide the best medical care available, while social workers and psychologists also help look after parents’ wellbeing.

Cystic Fibrosis Community Care provides support services and advocacy to the CF community. We help parents of newly-diagnosed children by providing programs, funding, advice and referrals to help you adapt to life as a CF family. We’re also here just to chat and to listen. Please contact our offices in Melbourne on (03) 9686 1811 or Sydney on (02) 8732 5700 to talk confidentially with a member of our support team.

I have been diagnosed with CF later in life

Dealing with the news that you have cystic fibrosis can be difficult. But it’s important to know that your journey with CF is not one that you have to travel alone.

Your CF hospital clinic team will provide the best medical care available, while social workers and psychologists also help look after your wellbeing.

Cystic Fibrosis Community Care provides support services and advocacy to the CF community. We help people living with CF and their family and friends by providing programs, funding, advice and referrals to help you adapt to life living with CF. We’re also here just to chat and to listen. Please contact our offices in Melbourne on (03) 9686 1811 or Sydney on (02) 8732 5700 to talk confidentially with a member of our support team.

More information

Connect with another community member - sometimes it’s great just to talk to someone who know what you are going through. Our peer support program can connect you with others from the CF community who share similar experiences.